Tears

I envy people who cry. 

In middle school, I remember sitting in a circle of eight girls. We were at an age when girls are developing emotional skills at an accelerated pace. One girl was losing her mom to cancer and two of the other girls had lost their mothers already.  They were telling their stories of cancer and pain and guilt and loss. It was as emotional as can be. The whole group was sobbing.

Photo by Robin Peters

Except me.

It wasn’t that I wasn’t  sad. I just couldn’t cry. I looked around the circle and wondered what the heck was wrong with me. 

I pretended to cry. I looked down and copied the heaving chests, the running noses. I wiped my face as if to push away tears that didn’t exist. I wanted to honor their stories and boy oh boy did I want to be able to cry.

In the 40 years since, I can remember three or four solid crying sessions. The kind that leave you tired and empty – but empty in a cleaned out sort of way. 

I “mist up” like any human, but I’m lucky if a single tear erupts and then the opportunity just evaporates. 

I’m checking my privileges. I’ve led a charmed life of health and freedom. But my career has me holding space for people as they process all kids of grief and loss. As I hold space for people to grieve and process – I wish I could dip in and borrow a little bit of the relief a good cry offers. 

Once I read a piece of mine to a group of writers. It was an emotional piece about a pony who died that I respected and cherished. I looked up at the end of the piece to the instructor and she said;

“Look around Joell.”

I beheld a room full of crying people of different ages. People I knew and people I’d just met and I’d moved them to feel something deep. As usual, I envied their tears. 

I used to cry in my sleep until I realized that I knew I was dreaming of crying. I’d immediately either wake up or dream that my crying was interrupted. 

Have I become so jaded, so guarded, so controlling that I won’t give myself permission to feel? This notion is a nasty heavy thought to haul around – I don’t recommend it.

But something happened yesterday.

Becca asked me to help with a new family. She hoped my knowledge and insight could help draw out from the mother some ideas of how to serve the family.

The daughter has a host of diagnosis’ with an overarching label of “failure to thrive.” Those three words alone should make any mother cry – especially mothers of premature babies.

The daughter is four years old. She’s not able to crawl or hold her gaze for long. Her head and eyes loll about as she squirms like an infant. A golf ball sized growth on her forehead distracts you from her velvet blue eyes and her downy soft curly hair. 

Photo by Robin Peters

Becca was on Mowgli – the world’s best back riding horse. He’s an imported gelding deemed “too lazy” to be a dressage horse. He’s a closed book emotionally. He prefers to be alone. He’s trustworthy, obedient and steady but not affectionate or joyful. He shows no preference for particular humans but is extremely clear if he has a dislike for another horse. If you were to ask me what motivates him – I’d say he likes to be peacefully alone. 

The mother strapped her daughter into an infant’s pouch across the mother’s chest and approached us. Mowgli never flinched when the daughter’s legs kicked out in excitement. The child stuck out her tongue and leaned towards Mowgli’s head. Her hand reached directly toward his eye. She leaned her forehead on his face and she softly licked his cheek. 

Any horseperson knows that the mother and the child were milliseconds away from an injury should Mowgli shake his head to remove a fly. They were in an invasive spot to the horse’s face and could be nudged hard by his nose, nipped by his teeth or bonked by the hard bones of his jaw.

Looking at Mowgli, I saw a softening I’ve never seen from him: A quietness and a kindness that wasn’t patience or fortitude, but a flow of care and sweetness and stillness he’s never shown to another creature in the years we’ve had him.

My chest tightened and tears welled as I looked him in the eye and asked him with my mind “Are you sure you’re ok?”

Mowgli’s look told me to either leave them alone, or kindly rest into the sweetness and allow all of us to feel our way into a communion of innocence and presence. My tears, as usual, evaporated. I allowed the peace, the stillness, and the kindness to wash over me.

Perhaps I’ve learned to cry like a horse. 

Resources for Understanding Trauma – As a Hamilton Parody

The question of how to help parents, teachers, and community members understand that many children who have been identified as having “behavior issues” that have traditionally been dealt punishments, isolation, and worse actually are desperately needing attunement, care, and acceptance is on my mind very much. 

I could spend time “preaching to the choir” talking to families of people with kids that have been labeled as challenging and we could compare horror stories of how their kids had been treated badly in the community – but while that helps hold space for families, I wanted to assemble something for others to explore and to expand their understanding of how brains work, how real compassion is not “coddling” and also to bring a sense of curiosity that may lead people to explore this work.

The challenge then, becomes one of getting people’s interest. One of my favorite ways to think about sparking interest is to make something funny, catchy, accessible and entertaining. But how do you make the intersection of brain science and compassion entertaining without undermining the critical nature of both subjects?

My solution: an amateur parody of a song that is widely known, catchy and, well – fun.

I chose Lin-Manuel Miranda’s “Alexander Hamilton” because it’s a well-known story born from trauma that develops into triumph; because it’s got a lot of words in it so that I could fit a lot of concepts into the parody and because I just love the tune. 

Below the video is a list of resources – a toolkit of sorts – most of them mentioned in the parody lyrics and I few that I think are useful on many levels for building classrooms and communities that can recognize toxic stress in people and react with attunement, co-regulation and kindness where we might otherwise be defensive, angry or confused. 

I’d like to thank the staff of Square Peg Foundation for being such good sports as I finagled them into singing lyrics, reviewing footage, and mostly for being shining beacons of humanity in exemplifying trauma informed practices. 

Resources

DANA, D. Creating A Story Of Safety: A Polyvagal Guide To Managing Anxiety. . (2020). [Video/DVD] PESI Inc. https://video.alexanderstreet.com/watch/creating-a-story-of-safety-a-polyvagal-guide-to-managing-anxiety

DELAHOOKE, M. (2019). Beyond behaviors: Effective neuroscience-based tools to transform childhood behaviors. Eau Claire WI: PESI, Inc.

DESAUTELS, L. (2020). Connections over compliance: Rewiring our perceptions of discipline. Deadwood, OR: Wyatt-Mackenzie Publishing.

HARRIS, Nadine Burke (2020). Deepest well: Healing the long-term effects of childhood adversity. BLUEBIRD. 

HARRIS, Nadine Burke (2019) Written Statement of Dr. Nadine Burke Harris Surgeon General of California Before the Committee on Education and Labor United States House of Representatives Full Committee Hearing: Trauma-Informed Care in Schools  https:// edlabor.house.gov/imo/media/doc/BurkeHarrisTestimony091119.pdf

PERRY, Bruce. (2017, November 16). Early Brain Development: Reducing the Effects of  Trauma [Video]. https://www.youtube.com/watch?v=Hp6fZrzgiHg

PERRY, B. [Info NMN]. (2020,). 12. Understanding the Power Differential:Neurosequential Network Series on Stress & Trauma. [Video]. YouTube. https://www.youtube.com/watch?v=ulwfwYDffV8

PERRY, B. [Neurosequential Network]. (2020, April 2). 4. Regulate, Relate, Reason (Sequence of Engagement): Neurosequential Network Stress & Trauma Series. YouTube. 

PERRY, B. D. & APLON, J.S. (2019) In Collaborative Problem Solving: An Evidence based Approach to Implementation and Practice.  Springer, Boulder

PERRY, B.D.  & WINFREY, O.  (2021) What happened to you? Conversations on trauma, resilience, and healing.  Flatiron.

PORGES, S.W. (2020). Clinical Neuropsychiatry. The Covid-19 Pandemic Is a Paradoxical       Challenge to Our Nervous System: A Polyvagal Perspective, 17(2), 135–138.

PRIZANT, Barry, PhD. (2016) Uniquely Human: A Different Way of Seeing Autism, Simon & Schuster

VAN DER KOLK, B.  (2012).  The Body Keeps the Score.  Viking.

Precious Gifts

Here’s hoping your Holidays have been healthy and kind.

Here at Square Peg, we have so much to be thankful for. The rains have finally arrived and despite the mud, we are thankful for the water that is quenching California. We are thankful for the support of our community, for the trust of our families and for the kindness and the generosity of our horses.

Last month, Stanton Hill, an accomplished filmmaker reached out to us to offer a gift of his tremendous talent. Due to COVID travel restrictions, we were only able to provide him with stock video of Square Peg. He studied our website, asked a few great questions and what he turned out took our breath away.

Enjoy Stanton’s 1:00 video showcasing the horses – Square Peg’s real heroes and capturing the majesty, the love, and the healing they bring.

Here’s to precious gifts.

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Wow.

A dear friend is a trauma specialist. Not only is she tremendously effective as a therapist, she’s wildly curious about different approaches.  She’s open, thoughtful and fearless in exploring other modalities and theories. 

She visited a neuro-feedback specialist in just this fashion. 

She asked the specialist what she needed to divulge about her history in order to get started.  The specialist said “Nothing.  I don’t want any backstory to color my initial evaluation.”

Intrigued, my friend submitted to the measurements, the tests and the observations. 

Eventually, the specialist pronounced “Well, I don’t see any evidence of childhood trauma in your brain.”

My friend gently informed the specialist that the observation was entirely untrue. My friend has a prolonged, horrific and documented traumatic childhood until the age of seven.

Without batting an eye, the specialist answered

“Oh, then you must have had horses.”

HORSES. HEAL. 

Green With Eddie by Square Eddie. Winner of $134,570

Forbidden Fruit

Perhaps you remember the 1990 ad campaign from Volkswagen.  They cleverly coined a silly made up German word – “Fahrvergnügen” means “driving enjoyment” in English (from fahren, “to drive,” and vergnügen, “enjoyment”).

That’s not what Fahrvergnugen means at Square Peg. 

Here – Fahrvegnugen means much much more.  At least to one little guy.

Like all of us, he’s struggling with his COVID reality.  Like all of us, he’s bored, restless and lonely.

Unlike you or me, he’s only 6 years old and he’s got ZERO control over any of it. He’s also got a neurology that demands that he MOVE and RUN and EXPLORE even more than the average 6 year old.

As a result, he’s broken toys and furniture in the home, he’s losing sleep, he’s unable to access classwork on a Zoom call. 

These are hard times for him.

In hard times, we all look for coping techniques and once again, many things that are available to an adult aren’t available to him.

I’m going to level with you here.  I’m a person who has, from time to time (read: often) used “bad language.” Certain words are powerful, crass, and more satisfying than I should admit. They are words that punctuate, color, bruise, entertain, illustrate. And they are off limits to a 6 year old. 

Ergo, these words become delicious, tantalizing, compelling and bold. Dangle them in front of a bored, restless, lonely, curious, bright and frustrated child and VIOLA – you’ve got a powder keg of f-bombs just waiting to explode.

This young man’s imagination and curiosity are stupendous. His intelligent mind is on fire from the minute his eyes open in the morning. Consequently motivating him to stay on task – any task for any length of time is not just a critical skill, it’s really – frickin’ hard.

So we used a lever.  We told him that sitting on our pony’s back was a safe place – a place where he could say anything he wanted…… 

And boy did he let some frustration fly. From the privacy of the ranch, we didn’t flinch when he let off verbal steam and we gave him a channel for his frustration.

But at some point, we have to re-direct. Because the world can be an unkind place for a little guy with a neurology that causes him to rush and dart about, climb into small spaces, over walls and fences while shouting obscenities like a rap star.  But taking away such delicious, tempting, powerful words also felt like a cruelty and a misuse of trust. And it set us all up for failure. 

With the permission of this child’s amazing mom, we met as a team and devised a “secret language” with our own, private, powerful words that were satisfying to say, secret, and only ours.  These would be words that were tricky to say – words that would, in stealth, help him with some speech pathology while achieving the soothing power of a strong words that punctuate big feelings. 

Words that are satisfying to say – like a laying down of a pressure-laden burden. Words that skirt the edges of naughty – but plunge into the magical depth of 6 year old silliness. Mystical, secret words shared between trusted friends. 

“Fahrvergnuegen”

One of the things about the field of autism support that both energizes me and exhausts me is that as the science evolves and changes, we find that our most basic understandings of humanity – namely the critical role of engaged and loving caregivers as well as the role of playfulness – are consistently the most effective in relieving the suffering of autism families.  it’s the intention of helping to give a voice to those who suffer – rather than the method by which we elicit that voice that matters most. While we all strive to find more effective and reliable methods to facilitate communication in those with language or emotional barriers, we must never forget that the humanity of the affected person is paramount.

Essential – A Blog Post by Davis Finch

Joell’s note: My friend Davis Finch is a deep thinker. His honesty is rare and the clarity of his writing inspires me. He is generous with helping me see the world though his unique lens which includes autism and anxiety. Below are his thoughts about the COVID lockdowns, mental health, the importance of meaningful work and his processing of the loss of a good friend.

         Since the start of the pandemic, a lot has been said about essential workers.  Certainly, front-line workers such as doctors and nurses who work with Covid-19 patients deserve our praise.  But the phrase essential workers and the policies surrounding it sometimes make it seem like most workers and most jobs are not important.  The problem with this sort of framing is that while many jobs may not be absolutely necessary for society to function, they are essential to the people who work them. It is not only the pay that is essential, but also the dignity and sense of purpose that comes with working.  That is what I feel is missing from the proposition that we should pay people to stay home for the duration of the pandemic.  Sure, that sort of policy might mean fewer deaths from COVID, but it would not help the mental stresses involved with social distancing, namely isolation, and the despair that comes with living merely to survive.  If millions of people are living that way, COVID may ebb somewhat, but at a cost of potential increases in suicide, domestic violence, alcoholism, self-harm, and other antisocial coping mechanisms.  Clearly, there is more that is essential to a healthy society than income, hospitals, and grocery stores.  Also essential is in-person human interaction, a sense of purpose, and freedom to leave your house; in other words, a sense of dignity.  When governments deny their citizens those other essentials, are they not denying them their humanity?

What is essential also depends on the individual.  Some personal “essentials” may be ridiculous or politically motivated, but others are activities or enterprises that are truly fundamental to a person’s well-being.  Personally, perhaps in part because of my Autism, I have a heightened fear of overly draconian restrictions imposed by a well-meaning but ignorant leader.  I am a very anxious person, so constant rumors about new restrictions combined with reports of record new case numbers and deaths has made this a very difficult time for me.  Furthermore, I was good friends with Golden Gate Fields trainer Bob Hess Sr. and the news of his death from the virus brought the pandemic home for me.  When I am at home by myself, I tend to dwell on everything and my mental state can decline.  Being with horses is my escape and I am terrified of losing the ability to do that.  These days, feeding horses is my job, but it is much more than that.  It is a chance to be outdoors, get away from my house, get some exercise, and make horses happy, which in turn gives me inner peace.  This peace helps me through the long nights at home and constant reports of bad news. Therefore, regardless of governmental classifications, this job is essential to me.

COVID-induced restrictions, when applied appropriately, are a useful tool for fighting a devastating disease, but leaders need to realize that there are intangible essentials and make an effort to not deprive people of them.  The United States has actually been far more respectful of this than many foreign countries, with their extreme lock-downs that have, in some cases, been akin to house arrest.  As hard as it may be, sometimes it might be best for leaders to just give their citizens the best available data and recommendations for how to stay safe, but leave the tough personal choices to them.  Protecting public health while preserving society’s essential needs is a delicate balancing act and I do not envy those who have to make the difficult decisions.

My Hebrew Teacher

A video essay by Becca Knopf

Becca tells the story of meeting a family that would change the way she understands language and movement for the rest of her life.

Sharing Sacred Silence

Have you ever been  bombarded by sounds that made your skin crawl?  Are there sounds that make your guts clench and your ears ring? 

Could you imagine being locked in a room with somebody raking fingernails over a chalkboard while somebody else dragged a fork over a plate? 

What if that room had flashing disco lights and techno music that wouldn’t stop?

What if this were your reality 24/7?

As a human, you would develop coping techniques.  You would cover your ears, you would get your body moving to quell the gut clenching and skin crawling.  You might start humming to yourself to use the vibration of the humming to drown out the other sounds.

My friend H does all these things.  When things get too hard, he slams his fist into his head in  an attempt to re-direct the pain somewhere tangible and controllable.  

We’ve worked together for years. He’s a young man now and he’s got a dimpled smile that would land him a leading role in a Hollywood movie were it not for his assaulted sensory system which goes along with his autism diagnosis. 

H can’t tolerate much eye contact.  He’s already working hard to deal with the sensory load.  He gets real relief on a horse with the regular rolling motion and he’s very appreciative if you can keep your body, your voice and your horse quiet for him. I check in with him every few minutes and when he grants me a fleeting bit of eye contact, I know it’s a gift and I try not to abuse the gift by asking for more than he can give. 

But he is after all, a young man and he started to get bored walking circles in the arena.  

Last week, I had an idea.  I asked his caregiver permission to take him out onto our kayak.  

The next week I enlisted Becca to help. We put H on Tado, a tall and steady horse, and headed up the hill toward the pond. I worried that an airplane would fly over and send H into fits of auditory pain, I worried that the unfamiliar feeling of riding up a steep hill would cause him to jump off the horse in a panic and run to the safe quiet space of his caregiver’s car.  

H rode up to the pond, hopped off  Tado  and he and I loaded onto the kayak while Becca held Tado. H sat squarely in the middle of the kayak, which meant I was sitting on the upper third of the front of the boat – not ideal from a balance and buoyancy standpoint, but you roll with these things.

 Pushing out onto the pond, I second guessed myself.  If his rocking got more intense, could I keep us safe?  Especially since he was not going to scoot back and I was sitting very close to the front of the boat.  

I turned my body around so that H and I were back to back. This got my weight off the front of the boat and stabilized us a bit. However, H is not eager to be touched and I didn’t know how that would go.  I hoped that human touch would be accepted back to back where there would be no chance of a terrifying frontal gaze.  I was more than right.

I rowed the boat and H’s vocal stimming, his rocking and gasping began to slow. On a whim I quit rowing and the boat drifted soundlessly across the dark pond.  We drifted into some tulle reeds and I breathed out slowly and quietly and……..

Everything went silent.

All the rocking.  All the humming.  All the ear covering. 

And then.

He leaned into my back – and we just sat there.

Not rowing, not talking.  No agenda. Just two people leaning into each other on a pond on a beautiful day. 

We listened to the birds in the tulles – the wind in the eucalyptus trees. We enjoyed the smell of the pennyroyal that started blooming in the fields last week.  We could hear the sound of the horse quietly chomping grass as he and Becca waited for us. 

After 20 minutes, my heart was overflowing with serenity and the knowledge that I’d helped a young man find a beautiful stillness.  I knew I needed to break this sacred silence soon and head back to reality. 

I exhaled softly.  H echoed my sigh.  I handed him the paddle and he began to paddle us back to the horse. 

We got out of the boat with Becca and I looking at each other with tears.  I wasn’t making this up – Becca saw it and heard it too. 

We held the horse next to a bench and H hopped on, the dog joined us and everyone walked  down the hill together absorbed in silent thoughts. 

Connection is Communication

Communication without connection is useless. But true connection finds ways to communicate that are surprising and delightful. 

Dad, Beeri, and Becca greet new ottb, Patrick.

When Beeri’s family reached out to Square Peg Foundation asking if they would be able to start lessons in a year for their 5 year old son with cerebral palsy when they were in the United States, I was confused. Why would a family reach out to us so far in advance if they had never met us in person?

In early November 2019, I was riding my last horse for the day. 

It was getting dark. 

I was tired. 

I hadn’t planned to stay this late. 

And I was hungry. 

A car pulled in to the barn. I sighed, dismounted my horse and walked him over to the parked car. A couple emerged, with two tiny kids both in car seats. While introductions played out, the air, light, and energy around all of us shifted into a space of joy and curiosity. And the connection between all of us was strong and exciting. 

Their son Beeri, spoke only Hebrew and was still unable to walk. Beeri crawled on his hands and knees, face shining with interest towards the horses, not a care for the dirt and rocks under his hands and knees. His parents’ were chasing a dream in the US to help their son walk. They asked Square Peg to be part of their therapy regimen. I agreed.

Beer often crawled up to the barn from the car the first few months he came to the barn. Puddles were very fun and distracting.

Several times every week for the next eight months a combination of mom, dad, sister, and brother would venture out to the farm for rides on Mowgli or Hermes. On horseback we explored each trail and arena in the vicinity, often singing despite our language barrier.

Beeri taught me new words; a “Nahaal,” was created from digging in the dirt under the olive trees and letting the recent rain water flow. “Cal-ah-kavod,” was the most popular word during games with Gabriela and Mowgli, congratulating and exclaiming what a good job everyone was doing (it translates roughly to “good job”). “Aba,” was said with longing when Beeri decided he had been away from his dad for too long. 

Beeri and Becca atop Mowgli.

After half a dozen sessions we ventured out on the road trail unaccompanied by mom or dad. Riding together on Mowgli we did the whole 20 min path singing, humming, and dancing along to Hanukah classics. When we did make it back we were happy to see Aba, but went right into the arena to count, “Achat, shtayim, shalosh, canter!” This was the first time Beeri had been okay with the distance from his parents since before his surgery eight months prior. The freedom of movement and speed we were able to travel not only gave Beeri the giggles, but it fostered his independence through his horse friends. 

After our ride the following week Beeri and his dad went into the tack room for lunch. Five minutes later, Dad walked out of the tackroom all smiles and brimming with enthusiasm, “I am going to my car!” He exclaimed with pride. “He told me he was fine to be by himself, this is the first time he has let me leave him truly alone for a few minutes since his surgery! (six months ago)” 

Sister and brother back-ride with Becca on ottb Hermes.

Beeri’s strength and independence grew each week. While we rode we would teach each other words. “Yellow,” is “Tze-ov,” Mowgli’s color is, “chaum.” The sky is “cah-chall.” My pronunciation was poor, but Beeri saw that I was trying and he would laugh and say “no” or “yes” in his sweet way. Beeri knew I was trying to understand and that was all that mattered to him.

Beeri and I connected through the horses, through joy and curiosity. From the movement of the horse, Beeri began to make the complicated neural and muscular connections to begin to learn to walk. His parents felt like it was miraculous. But I feel like I was at the winning end of our relationship – because Beeri brought his smile, his willingness to try, his curiosity about the world and his patience in teaching me about his world.  

Beeri and his family will be out of the country for some time due to visa constraints and our global health situation. While I dearly hope they will be back, I have no doubt that this beautiful family is spreading their joy and kindness to others on this planet we all call home. 

Children like Beeri teach us that spoken language is only one way to communicate and that walking is only one way to travel the world. Beeri and his family reminded me how beautiful life can be when you are open to listening with with your whole self.

Walking tall with assistance from canes, Beeri leads the way with Becca and Hermes following.

Leadership – Cool to be Kind

A parent made an astute observation yesterday.  She said that it’s rare – very rare and instinctual for somebody to speak to people with disabilities in a way that is not demeaning and still appropriate.  

I struggle with learning to make space for others in conversation and not talk over a person who is naturally quiet.  I struggle with dead space and thoughtful pauses.  I talk a lot. 

I’ve tried to figure out how to incorporate “tone of voice” into our trainings. And it falls flat. I can feel that the message isn’t landing and I’ve seen really educated and well trained people in the field talking down to clients in a way that makes me squirm. 

So it’s my job to figure out how to teach it. 

I had the benefit and the honor of some early and profound mentors. They taught by example of how Dignity, Humor and Love are the keys to success in this field.

I went to a high school in the suburbs of Sacramento.  It was a public school, not too fancy, nothing special about it. Except for one thing.

“Gary’s Kids.”

Gary Hack was a special ed teacher. He pioneered what he called “Life Skills” for his kids who were mostly Downs Syndrome students. Gary was a young teacher – handsome, fit and funny. Not only did Gary connect with his students, he joked with them, he played with them, he adored them. Gary never talked down to his kids. And then he went further.

Gary created a culture at our suburban high school where all of the “cool kids” petitioned to work in his class.  The cool kids knew Gary’s students by name and they followed Gary’s lead and treated the students with care and dignity and good humor. And if they didn’t, Gary would fire any cool kid who thought they were “too cool” to treat his students well. Consequently, Gary’s students were by association, also cool kids.  They were protected, cared for and VALUED. 

Gary created a culture where it was cool to be caring. He made it fun because he adored his students and adored their innocence – he valued their strength – their sweetness and simplicity and showed us all how refreshing it is to be around people that are fundamentally sweet – and he made it COOL. 

Gary was a leader and he did his work magnificently. 

I am grateful for powerful mentors. 

I Googled his name this morning and found nothing.  Nothing of where he is now, of his work of any further achievements he made. I can tell you that he made an impression on me and on my brother. Mr. Hack, wherever you are – thank you.